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Sjogren’s Syndrome Support Groups Online

Sjogren’s is often described as dry eyes and dry mouth, which leaves out the fatigue that can shape a whole day. ShareWell has free online support groups for people living with long-term illness, where you can talk with others who know it affects the entire body.

Live groups available daily.

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Sat, Oct 10 | 10:30AM - 12:00PM UTC

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Upcoming Groups

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Deep Breathing

all who want to connect breath and body or release.

Breathwork

Emotional regulation

Healthy habits

2/16

Sat, 10/10, 3:00 PM • 30 min

GordonJD

Major Depression & Severe Anxiety

for depression and anxiety

Anxiety

Chronic Illness

Depression

6/16

Sun, 10/11, 12:00 AM • 90 min

ScarlettFireheart

Gastroly Ever After

Gut issues , emotional experience, stress

Anxiety

Chronic Illness

Women's health

2/8

Sun, 10/11, 3:00 AM • 60 min

seasonzofapril

Yoga Session [Beginner Freindly]

Those who want to connect to breath body and mind.

Breathwork

Chronic pain management

Healthy habits

1/18

Sun, 10/11, 1:00 PM • 45 min

Topic context

Understanding sjogren’s syndrome

Sjogren’s syndrome, which the Sjogren’s Foundation now calls Sjogren’s disease, is a long-lasting autoimmune disease in which the immune system attacks the glands that make moisture. It causes dry eyes and dry mouth and can affect joints, nerves and other parts of the body, and many people describe heavy fatigue and trouble concentrating.

Why it helps

How peer support helps with sjogren’s syndrome

Peer support can help with Sjogren’s because many people spend a long time uncertain before they get a name for what they have, and feel alone with it afterward. A group brings you into contact with others on the same path.

Inside the room

What sjogren’s syndrome groups often cover

Fatigue that gets in the way of daily life
Trouble thinking clearly or remembering
Dry mouth that makes speaking and eating harder
Strain on work, relationships and social life

ShareWell groups are peer support and do not give medical advice, so please keep working with your care team on anything about diagnosis or treatment. If you are in crisis, call or text 988 to reach the Suicide & Crisis Lifeline.

Good fit for

Who these groups may help

Women and men living with Sjogren’s
People who finally have a name for their symptoms
Anyone who feels alone with the condition

Keep exploring

Frequently asked questions

Is there an online support group for Sjogren’s?

A Sjogren’s group is not offered on ShareWell for now. People with Sjogren’s can join the groups on this page, which serve anyone with a long-term illness, or one of the calm sessions.

Talking dries my mouth. Can I still take part?

Yes. Keep water beside you, take breaks, and use the chat when you prefer.

Is Sjogren’s disease the same as Sjogren’s syndrome?

Yes. They are two names for the same condition, and the Sjogren’s Foundation now uses Sjogren’s disease.

Where can I find medical information about Sjogren’s?

The Sjogren’s Foundation (sjogrens.org) has information for patients and families.