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Sickle Cell Disease Support Groups Online

Live groups available daily.

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Featured Today

FUKK Fibroids: Fighting Uterine Knots w/ knowledge

in 14 hours

NEW

FUKK Fibroids: Fighting Uterine Knots w/ knowledge

Sat, Oct 10 | 10:30AM - 12:00PM UTC

A dedicated peer support and educational space for women navigating the physical, emotional, and everyday challenges of uterine fibroids. Together, we replace silence and isolation with advocacy, shared experiences, evidence-based knowledge, and holistic womb wellness tools. Whether you are exploring treatment options, managing symptoms, or recovering, you don't have to fight alone.

Attendees

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Upcoming Groups

seasonzofapril

Deep Breathing

all who want to connect breath and body or release.

Breathwork

Emotional regulation

Healthy habits

2/16

Sat, 10/10, 3:00 PM • 30 min

GordonJD

Major Depression & Severe Anxiety

for depression and anxiety

Anxiety

Chronic Illness

Depression

6/16

Sun, 10/11, 12:00 AM • 90 min

ScarlettFireheart

Gastroly Ever After

Gut issues , emotional experience, stress

Anxiety

Chronic Illness

Women's health

2/8

Sun, 10/11, 3:00 AM • 60 min

seasonzofapril

Yoga Session [Beginner Freindly]

Those who want to connect to breath body and mind.

Breathwork

Chronic pain management

Healthy habits

1/18

Sun, 10/11, 1:00 PM • 45 min

People with sickle cell disease often have to convince others that their pain is real while they are in the middle of it. ShareWell has free online support groups for people living with long-term illness and pain, where members know what it is like to be doubted.

Topic context

Understanding sickle cell disease

Sickle cell disease is an inherited red blood cell condition that causes episodes of severe pain, known as crises, and for many people pain that is there every day. Many people say they have had to fight to have their pain taken seriously, including in emergency rooms.

Why it helps

How peer support helps with sickle cell disease

Peer support can help with sickle cell disease because being disbelieved on top of being in pain is deeply wearing. A group offers a place to be heard without having to argue your case.

Inside the room

What sickle cell disease groups often cover

Pain crises and recovering afterward
Not being believed in the emergency room
School, work and plans interrupted by hospital stays
Moving from child to adult care

ShareWell groups are peer support and do not give medical advice, so please keep working with your care team on anything about diagnosis or treatment. If you are in crisis, call or text 988 to reach the Suicide & Crisis Lifeline.

Good fit for

Who these groups may help

People living with sickle cell disease
Young adults moving into adult care
Parents and family members

Keep exploring

Frequently asked questions

Is there a sickle cell group?

We have not opened a sickle cell group. You are invited to the chronic pain and chronic illness groups on this page, whose members have many different diagnoses, and to the gentle sessions too.

Can I attend while I am admitted for a crisis?

Yes, if you have a device, an internet connection and feel well enough.

Can parents join?

Yes. Parents can join with their own account, and caregiving groups are available.

Where can I find medical information about sickle cell disease?

The National Heart, Lung, and Blood Institute (nhlbi.nih.gov) has a guide to living with sickle cell disease, and the Sickle Cell Disease Association of America is the national patient organization.