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Sickle Cell Disease Support Groups Online

Live groups available daily.

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NEW

PCOS Support Circle

Wed, Oct 07 | 2:30PM - 3:30PM UTC

For anyone managing polycystic ovary syndrome — irregular cycles, insulin and weight struggles, hair and skin changes, fertility questions, and contradictory medical advice. Share what's actually helped and what hasn't with people who get it.

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Upcoming Groups

ElleJi

DBT Skills Lab

Emotion Regulation, Mindfulness, Interpersonal Effectiveness

Emotional regulation

Mindfulness

Relationship struggles

12/25

Today 10:00 PM • 60 min

MyFaithKeepsMeGrounded

Wisdom Win Wednesday

Giving Up Is Not An Option

Healing

Identity

Mindfulness

4/10

Today 11:00 PM • 60 min

Palepetalbloom

Between Worlds

Escape the Ordinary. Journey Into Another World.

Meditation

Personal development

Spirituality

1 spot left

9/10

Thu, 10/8, 1:00 AM • 90 min

simple stretches to be a healthier & relaxed you

Recovery

simple stretches to be a healthier & relaxed you

Stretches for the body and calm for the mind

Breathwork

Chronic pain management

Healing

5/16

Thu, 10/8, 3:30 PM • 30 min

People with sickle cell disease often have to convince others that their pain is real while they are in the middle of it. ShareWell has free online support groups for people living with long-term illness and pain, where members know what it is like to be doubted.

Topic context

Understanding sickle cell disease

Sickle cell disease is an inherited red blood cell condition that causes episodes of severe pain, known as crises, and for many people pain that is there every day. Many people say they have had to fight to have their pain taken seriously, including in emergency rooms.

Why it helps

How peer support helps with sickle cell disease

Peer support can help with sickle cell disease because being disbelieved on top of being in pain is deeply wearing. A group offers a place to be heard without having to argue your case.

Inside the room

What sickle cell disease groups often cover

Pain crises and recovering afterward
Not being believed in the emergency room
School, work and plans interrupted by hospital stays
Moving from child to adult care

ShareWell groups are peer support and do not give medical advice, so please keep working with your care team on anything about diagnosis or treatment. If you are in crisis, call or text 988 to reach the Suicide & Crisis Lifeline.

Good fit for

Who these groups may help

People living with sickle cell disease
Young adults moving into adult care
Parents and family members

Keep exploring

Frequently asked questions

Is there a sickle cell group?

We have not opened a sickle cell group. You are invited to the chronic pain and chronic illness groups on this page, whose members have many different diagnoses, and to the gentle sessions too.

Can I attend while I am admitted for a crisis?

Yes, if you have a device, an internet connection and feel well enough.

Can parents join?

Yes. Parents can join with their own account, and caregiving groups are available.

Where can I find medical information about sickle cell disease?

The National Heart, Lung, and Blood Institute (nhlbi.nih.gov) has a guide to living with sickle cell disease, and the Sickle Cell Disease Association of America is the national patient organization.