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Scleroderma Support Groups Online

Scleroderma is rare enough that many people never meet another person who has it. ShareWell has free online support groups for people living with long-term illness, where you can find company for symptoms that are visible as well as ones nobody sees.

Live groups available daily.

Join a Free Group How It Works

Featured Today

FUKK Fibroids: Fighting Uterine Knots w/ knowledge

in 14 hours

NEW

FUKK Fibroids: Fighting Uterine Knots w/ knowledge

Sat, Oct 10 | 10:30AM - 12:00PM UTC

A dedicated peer support and educational space for women navigating the physical, emotional, and everyday challenges of uterine fibroids. Together, we replace silence and isolation with advocacy, shared experiences, evidence-based knowledge, and holistic womb wellness tools. Whether you are exploring treatment options, managing symptoms, or recovering, you don't have to fight alone.

Attendees

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Upcoming Groups

seasonzofapril

Deep Breathing

all who want to connect breath and body or release.

Breathwork

Emotional regulation

Healthy habits

2/16

Sat, 10/10, 3:00 PM • 30 min

GordonJD

Major Depression & Severe Anxiety

for depression and anxiety

Anxiety

Chronic Illness

Depression

6/16

Sun, 10/11, 12:00 AM • 90 min

ScarlettFireheart

Gastroly Ever After

Gut issues , emotional experience, stress

Anxiety

Chronic Illness

Women's health

2/8

Sun, 10/11, 3:00 AM • 60 min

seasonzofapril

Yoga Session [Beginner Freindly]

Those who want to connect to breath body and mind.

Breathwork

Chronic pain management

Healthy habits

1/18

Sun, 10/11, 1:00 PM • 45 min

Topic context

Understanding scleroderma

Scleroderma is an autoimmune disease that causes areas of tight, hard skin. The localized form affects the skin, while systemic scleroderma, also called systemic sclerosis, can affect blood vessels and internal organs, and fingers and toes can react painfully to cold or stress.

Why it helps

How peer support helps with scleroderma

Peer support can help with scleroderma because a rare disease brings a feeling of isolation. Being with people who also live with long-term illness makes it less lonely.

Inside the room

What scleroderma groups often cover

Feeling alone with a rare disease
Changes to the skin of the face and hands
Painful hands in the cold
Taking in a complex new diagnosis

ShareWell groups are peer support and do not give medical advice, so please keep working with your care team on anything about diagnosis or treatment. If you are in crisis, call or text 988 to reach the Suicide & Crisis Lifeline.

Good fit for

Who these groups may help

People with localized or systemic scleroderma
People taking in a new scleroderma diagnosis
Family and friends who give support

Keep exploring

Frequently asked questions

Is there an online support group for scleroderma?

ShareWell has not set up a scleroderma group. The groups listed here welcome people with chronic illness of every type, and gentle sessions are shown alongside them.

Will anyone understand a rare disease?

Members live with many different conditions, and the experience of long-term illness is something they share.

Can someone close to me attend as well?

Yes. Loved ones can take part with a free account of their own.

Where can I find medical information about scleroderma?

The National Scleroderma Foundation (scleroderma.org) can be reached toll free at 800-722-4673.