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Interstitial Cystitis (IC/BPS) Support Groups Online

Interstitial cystitis can put a bathroom at the center of every plan, including sleep. ShareWell has free online support groups for people living with long-term illness and pain, where you can connect, share experiences and step away whenever you need to.

Live groups available daily.

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FUKK Fibroids: Fighting Uterine Knots w/ knowledge

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Sat, Oct 10 | 10:30AM - 12:00PM UTC

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Upcoming Groups

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Deep Breathing

all who want to connect breath and body or release.

Breathwork

Emotional regulation

Healthy habits

2/16

Sat, 10/10, 3:00 PM • 30 min

GordonJD

Major Depression & Severe Anxiety

for depression and anxiety

Anxiety

Chronic Illness

Depression

6/16

Sun, 10/11, 12:00 AM • 90 min

ScarlettFireheart

Gastroly Ever After

Gut issues , emotional experience, stress

Anxiety

Chronic Illness

Women's health

2/8

Sun, 10/11, 3:00 AM • 60 min

seasonzofapril

Yoga Session [Beginner Freindly]

Those who want to connect to breath body and mind.

Breathwork

Chronic pain management

Healthy habits

1/18

Sun, 10/11, 1:00 PM • 45 min

Topic context

Understanding interstitial cystitis

Interstitial cystitis, also called IC or bladder pain syndrome, is a long-lasting condition that brings pain or pressure in the bladder and pelvic area. It means needing to urinate often and urgently, including through the night, and symptoms can flare after stress, certain foods, long periods of sitting, travel or sex.

Why it helps

How peer support helps with interstitial cystitis

Peer support can help with interstitial cystitis because bladder and pelvic pain are hard to bring up, even with close friends. A group is a safe place to talk about the parts of IC that stay private everywhere else.

Inside the room

What interstitial cystitis groups often cover

Flares set off by ordinary things like travel or sitting
Broken sleep from getting up through the night
Avoiding intimacy because of pain
Living with IC alongside other pain conditions

ShareWell groups are peer support and do not give medical advice, so please keep working with your care team on anything about diagnosis or treatment. If you are in crisis, call or text 988 to reach the Suicide & Crisis Lifeline.

Good fit for

Who these groups may help

Women and men living with IC or bladder pain syndrome
People who plan every outing around a bathroom
Partners, family members and friends

Keep exploring

Frequently asked questions

Is there an online support group for interstitial cystitis?

ShareWell does not have an IC group of its own. The groups listed on this page are for people with long-term illness and pain of any kind, together with gentle sessions, and people with IC are welcome.

Can I leave the session to use the bathroom?

Yes, as often as you need. You can step out and rejoin without explaining.

Can I talk about intimacy and IC?

Yes, if you want to. You decide how much to share.

Where can I find medical information about interstitial cystitis?

The Interstitial Cystitis Association (ichelp.org) serves people with IC and bladder pain syndrome.