✨ Real people. Real conversations.

Huntington’s Disease Support Groups Online

Live groups available daily.

Join a Free Group How It Works

Featured Today

FUKK Fibroids: Fighting Uterine Knots w/ knowledge

in 14 hours

NEW

FUKK Fibroids: Fighting Uterine Knots w/ knowledge

Sat, Oct 10 | 10:30AM - 12:00PM UTC

A dedicated peer support and educational space for women navigating the physical, emotional, and everyday challenges of uterine fibroids. Together, we replace silence and isolation with advocacy, shared experiences, evidence-based knowledge, and holistic womb wellness tools. Whether you are exploring treatment options, managing symptoms, or recovering, you don't have to fight alone.

Attendees

RESERVE NOW

Upcoming Groups

seasonzofapril

Deep Breathing

all who want to connect breath and body or release.

Breathwork

Emotional regulation

Healthy habits

2/16

Sat, 10/10, 3:00 PM • 30 min

GordonJD

Major Depression & Severe Anxiety

for depression and anxiety

Anxiety

Chronic Illness

Depression

6/16

Sun, 10/11, 12:00 AM • 90 min

ScarlettFireheart

Gastroly Ever After

Gut issues , emotional experience, stress

Anxiety

Chronic Illness

Women's health

2/8

Sun, 10/11, 3:00 AM • 60 min

seasonzofapril

Yoga Session [Beginner Freindly]

Those who want to connect to breath body and mind.

Breathwork

Chronic pain management

Healthy habits

1/18

Sun, 10/11, 1:00 PM • 45 min

Huntington’s disease affects whole families, including the people who do not know whether they carry the gene. ShareWell has free online support groups for people living with serious illness and the people who love them, where you can talk openly.

Topic context

Understanding huntington’s disease

Huntington’s disease, or HD, is an inherited disorder that affects movement, behavior, mood and thinking. Because it runs in families, several generations can be affected at once, and relatives live with the question of their own risk.

Why it helps

How peer support helps with huntington’s disease

Peer support can help with Huntington’s disease because few people in the community understand it, which leaves families isolated. A group offers company from people who know what living with uncertainty is like.

Inside the room

What huntington’s disease groups often cover

Deciding whether or not to have genetic testing
Living at risk and the stress of not knowing
Changes in mood and behavior in someone you love
Caring for more than one family member

ShareWell groups are peer support and do not give medical advice, so please keep working with your care team on anything about diagnosis or treatment. If you are in crisis, call or text 988 to reach the Suicide & Crisis Lifeline.

Good fit for

Who these groups may help

People living with Huntington’s disease
People who are at risk, whether or not they have been tested
Spouses, children and caregivers

Keep exploring

Frequently asked questions

Is there an online support group for Huntington’s disease?

There is no HD group on ShareWell at this time. Families affected by Huntington’s are welcome in the groups on this page, which are for people dealing with serious illness in general, and in the gentle sessions too.

Do I need to have been tested to join?

No. The decision to test is personal, and nobody in a group will push you either way.

Is there room for spouses and adult children?

Yes. Caregivers and family members are welcome with their own account.

Where can I find medical information about Huntington’s disease?

The Huntington’s Disease Society of America (hdsa.org) has family resources and a helpline at 800-345-4372.