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Epilepsy Support Groups Online

For some people, epilepsy takes away things others take for granted, such as driving. ShareWell has free online support groups for people living with long-term illness, which you can reach without needing a ride.

Live groups available daily.

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Topic context

Understanding epilepsy

Epilepsy causes seizures that can happen without warning. Beyond the seizures themselves, many people live with limits on driving, side effects from medication, concerns about safety and the reactions of others.

Why it helps

How peer support helps with epilepsy

Peer support can help with epilepsy because fear and stigma lead many people to hide their condition. Talking with others who understand can make it easier to ask for what you need.

Inside the room

What epilepsy groups often cover

Not being able to drive
Fear of a seizure in public
Deciding who to tell at work or school
Tiredness and memory problems

ShareWell groups are peer support and do not give medical advice, so please keep working with your care team on anything about diagnosis or treatment. If you are in crisis, call or text 988 to reach the Suicide & Crisis Lifeline.

Good fit for

Who these groups may help

People living with epilepsy or a seizure disorder
People who have lost independence because of seizures
Parents of a child with epilepsy

Keep exploring

Frequently asked questions

Is there a group for epilepsy?

There is no epilepsy group for the time being. We show groups that welcome people with all sorts of ongoing conditions, and gentle sessions like mindfulness that anyone can join.

I cannot drive. How do I attend?

Every group is held by video, so you attend from wherever you are.

Should I tell the group about my seizures?

That is up to you. Hosts and members are peers and cannot send help to you, so if you are concerned about having a seizure on a call, have someone nearby who knows what to do.

Where can I find medical information about epilepsy?

The Centers for Disease Control and Prevention (cdc.gov/epilepsy) has guides to living with epilepsy, and the Epilepsy Foundation (epilepsy.com) is the main patient organization.