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Cystic Fibrosis (CF) Support Groups Online

Live groups available daily.

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People with cystic fibrosis are told to stay apart from each other to avoid passing infections, which makes meeting others with CF very hard. ShareWell has free online support groups for people living with long-term illness, where adults with CF, parents and caregivers can connect safely by video.

Topic context

Understanding cystic fibrosis

Cystic fibrosis, or CF, is a genetic disorder that causes problems with breathing and digestion. Thick, sticky mucus makes lung infections more likely, and because people with CF can pass germs to each other, they are advised to keep their distance from one another in person.

Why it helps

How peer support helps with cystic fibrosis

Peer support can help with cystic fibrosis because anxiety and low mood are common with CF, and in-person groups are often not an option. An online group is a way to be with people without any infection risk.

Inside the room

What cystic fibrosis groups often cover

Not being able to meet others with CF in person
Daily care that takes time and energy
Being diagnosed late or as an adult
Life after a lung transplant

ShareWell groups are peer support and do not give medical advice, so please keep working with your care team on anything about diagnosis or treatment. If you are in crisis, call or text 988 to reach the Suicide & Crisis Lifeline.

Good fit for

Who these groups may help

Adults living with cystic fibrosis
Parents of a child with CF
Partners, caregivers and families

Keep exploring

Frequently asked questions

Is there an online support group for cystic fibrosis?

ShareWell does not run a CF group at present. The groups here are for people living with long-term illness in general, with gentle sessions next to them, and adults with CF and their families are welcome.

Is it safe to meet other people with CF this way?

Groups meet by video only, so there is no in-person contact between members.

Can parents join?

Yes. Parents and caregivers can join with their own free account.

Where can I find medical information about cystic fibrosis?

The Cystic Fibrosis Foundation (cff.org) is the national patient organization, and the Cystic Fibrosis Research Institute (cfri.org) also runs support programs.